Living with HUVs: Goodbye 2011 and HELLO 2012 xxxx

Tuesday, 27 December 2011

Goodbye 2011 and HELLO 2012 xxxx

Happy New Year xxx

Well, as we see the year 2011 out and get ready to welcome in 2012 I'm sure that many of us will look back with mixed feelings.

My family and I will be reflecting on how lucky we have been whilst spending a couple of completely self indulgent moments thinking "why us" but on the whole we know it could have been so much worse.

2011 has been quite mind blowing for me, I have lost some friends, gained new ones and re-introduced myself to others.

The one thought that has stayed with me through this year is how can so many good things happen because of something really quite horrible. I am incredibly lucky to have some really good friends and family who have been there for me at a moments notice more than once, who have remained calm and taken the children when, in fact, they must have been really worried at the time.

My strength has come from Mark who has been absolutely amazing. Some partners/husbands would have crumbled or worse walked away from such a situation but he has contiuned to be the glue that holds us altogether and the sane voice who intterupts my ramblings when I am losing my sanity. He really is one in a million.......

I have fought a long hard battle to get back to work, I got into a wheelchair, accepted the change, cried through frustration, cried through laughter, set up this blog, unleashed Gracie-Lou Freebush to the World and re-introduced my feet to some very, very high heels.

So what does 2012 have in store for us???

I hope that the forthcoming year brings at least one thing that you can all enjoy, maybe more time for loved ones or just relaxation, for others I hope it brings you comfort and time for the pain to recede. As for me, I would like more quality time with my children where we, as a family, experience more days out without the children worrying about what other peope think, they will in time.

For me, I have several appointments in January with the new treatment due to start. I am happy to say that work is going really well and I am aiming to increase my time there after the spring.
I have already started booking in the monthly "girl's night out" another reason to get the high heels out, lovely!!!! I have a new lease of life and can't wait to be out in the world.

So, my friends, at 12.00 on Saturday night I will raise a glass to all of you who have supported Me, Mark, Jake and Boo.

I have two more words to say

THANK YOU

Sarah

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HUVS - what is it?

Hypocomplementemic urticarial vasculitis: Hypocomplementemic urticarial vasculitis: A rare condition characterized by the presence of recurring urticarial vasculitis, arthralgia or arthritis and hypocomplementemia. Hypocomplementemia involves a reduction or absence of blood complement which is a part of the body's immune system which destroying invading bacteria or other pathogens. More detailed information about the symptoms, causes, and treatments of Hypocomplementemic urticarial vasculitis is available below. Read more at http://www.wrongdiagnosis.com/h/hypocomplementemic_urticarial_vasculitis/intro.htm?ktrack=kcplink this information is from wrongdiagnosis.com

Hi, My name is Sarah and I have HUVs

Hi All My name is Sarah and I was diagnosed with HUVs earlier ths year. Like any normal person I immediately tried to find out more information but it was very limited. After exhausting my search I thought about a different approach, why not create a blog that can help and support others who find themselves with this rare and confusing condition. So here I am.... The aim of this blog is to give a realistic view of how my life has changed and what me, my family and friends experience on the journey.